Debra

DEBRA is the only national charity supporting people who have Epidermolysis Bullosa (EB), a genetic skin condition which causes skin and body linings to blister at the slightest knock or rub, causing painful, open wounds.

We are a caring organisation and give hope, dignity and practical help to everyone who has EB and their families.

We help them cope with the condition and have the best life they can - because EB cannot be cured and never just goes away.

We sometimes use three sentences to help people understand what life is like when you have EB:

  • Imagine waking up every morning feeling pain similar to second degree burns.
  • Imagine every time you knock or rub your skin it blisters angrily and comes away in your hand.
  • Imagine having to give your baby morphine before you change her nappy to help her pain.

Our work puts us in direct and daily contact with people who have EB and their families.

We fund nurses, run clinics and offer care and advice to EB sufferers, give welfare support and liaise with EB support groups across the country.

We also commission world-leading research into the condition with the aim of finding effective treatments and ultimately a cure for EB.

www.debra.org.uk

Latest News

ALPINE CHALLENGE - Stage 3, Selection of Finish Village photos

Tuesday 9th September 2014

A selection of photos take after Stage 3 in the race village on Lac d'Annecy.

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HotChillee's ALPINE CHALLENGE was the toughest yet. "Beauty and the Beast"

Tuesday 9th September 2014

The fifth edition of HotChillee’s ALPINE CHALLENGE finished this weekend in the Alps in glorious weather conditions, the best according to locals, of the entire summer. Based out of the beautiful lakeside town of Annecy there couldn’t have been more of a contrast between the peaceful setting and the brutal parcours.

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Events

The Cape Rouleur 2015