Debra

DEBRA is the only national charity supporting people who have Epidermolysis Bullosa (EB), a genetic skin condition which causes skin and body linings to blister at the slightest knock or rub, causing painful, open wounds.

We are a caring organisation and give hope, dignity and practical help to everyone who has EB and their families.

We help them cope with the condition and have the best life they can - because EB cannot be cured and never just goes away.

We sometimes use three sentences to help people understand what life is like when you have EB:

  • Imagine waking up every morning feeling pain similar to second degree burns.
  • Imagine every time you knock or rub your skin it blisters angrily and comes away in your hand.
  • Imagine having to give your baby morphine before you change her nappy to help her pain.

Our work puts us in direct and daily contact with people who have EB and their families.

We fund nurses, run clinics and offer care and advice to EB sufferers, give welfare support and liaise with EB support groups across the country.

We also commission world-leading research into the condition with the aim of finding effective treatments and ultimately a cure for EB.

www.debra.org.uk

Latest News

HotChillee and Cervélo form Strategic Partnership

Monday 19th January 2015

The multi faceted agreement means that Cervélo will be the Official Road Bike Partner for all HotChillee road events with the Cervélo R5 being the HotChillee Ride Captains bike of choice on all road events. Riders will also be able to gain access to Cervélo bikes, technology and education through the HotChillee Training Ride series that starts at the end of January. The partnership further means that HotChillee becomes an event partner to the famous bike brand.

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HotChillee team finishes second at the Coronation Double Century with Ben Swift, Nicholas Dlamini and Shameeg Salie supporting development cycling

Monday 24th November 2014

HotChillee 2, the team that included British pro Ben Swift and HotChillee development rider Nicholas Dlamini who has recently signed for the MTN-Qhubeka team, came second (5hr 9min 49sec) in the Coronation Double Century this weekend.

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Events

The Cape Rouleur 2015