Debra

DEBRA is the only national charity supporting people who have Epidermolysis Bullosa (EB), a genetic skin condition which causes skin and body linings to blister at the slightest knock or rub, causing painful, open wounds.

We are a caring organisation and give hope, dignity and practical help to everyone who has EB and their families.

We help them cope with the condition and have the best life they can - because EB cannot be cured and never just goes away.

We sometimes use three sentences to help people understand what life is like when you have EB:

  • Imagine waking up every morning feeling pain similar to second degree burns.
  • Imagine every time you knock or rub your skin it blisters angrily and comes away in your hand.
  • Imagine having to give your baby morphine before you change her nappy to help her pain.

Our work puts us in direct and daily contact with people who have EB and their families.

We fund nurses, run clinics and offer care and advice to EB sufferers, give welfare support and liaise with EB support groups across the country.

We also commission world-leading research into the condition with the aim of finding effective treatments and ultimately a cure for EB.

Latest News

Dunkerque-Roubaix with Geraint Thomas launched

Tuesday 11th March 2014

HotChillee announced today a new 165km Dunkerque to Roubaix single day Spring Classic with Olympic Champion Team Sky’s Geraint Thomas taking place on 27 April 2014. The ride will start in Dunkerque and wind through the fields of Flaanders before joining the final 40k of the most coveted spring classics, the Paris-Roubaix.

Read More ...

Cape Rouleur 2014 Stage 3 results - Dlamini wins 36ONE Yellow Jersey for Elton John Aids Foundation (EJAF)

Friday 7th March 2014

Cape Town, Western Cape, South Africa. Nicholas Dlamini riding for UBS/EJAF has won the coveted 36ONE yellow jersey at this year's Cape Rouleur. Karl Platt of Team Bulls won the Pro Category jersey. The ladies jersey went to Jo Merritt, with the climbers jersey to Josh Hodge and Bradwin Daniels the talented development rider from Cape Town Giants winning the sprinters jersey.

Read More ...

Events

The Alpine Challenge 2014 - 3-7 Sept 2014

The Cape Rouleur 2014