We are a caring organisation and give hope, dignity and practical help to everyone who has EB and their families.
We help them cope with the condition and have the best life they can - because EB cannot be cured and never just goes away.
We sometimes use three sentences to help people understand what life is like when you have EB:
Our work puts us in direct and daily contact with people who have EB and their families.
We fund nurses, run clinics and offer care and advice to EB sufferers, give welfare support and liaise with EB support groups across the country.
We also commission world-leading research into the condition with the aim of finding effective treatments and ultimately a cure for EB.
ALPINE CHALLENGE - Stage 3, Selection of Finish Village photosTuesday 9th September 2014
A selection of photos take after Stage 3 in the race village on Lac d'Annecy.Read More ...
HotChillee's ALPINE CHALLENGE was the toughest yet. "Beauty and the Beast"Tuesday 9th September 2014
The fifth edition of HotChillees ALPINE CHALLENGE finished this weekend in the Alps in glorious weather conditions, the best according to locals, of the entire summer. Based out of the beautiful lakeside town of Annecy there couldnt have been more of a contrast between the peaceful setting and the brutal parcours.Read More ...