Debra

DEBRA is the only national charity supporting people who have Epidermolysis Bullosa (EB), a genetic skin condition which causes skin and body linings to blister at the slightest knock or rub, causing painful, open wounds.

We are a caring organisation and give hope, dignity and practical help to everyone who has EB and their families.

We help them cope with the condition and have the best life they can - because EB cannot be cured and never just goes away.

We sometimes use three sentences to help people understand what life is like when you have EB:

  • Imagine waking up every morning feeling pain similar to second degree burns.
  • Imagine every time you knock or rub your skin it blisters angrily and comes away in your hand.
  • Imagine having to give your baby morphine before you change her nappy to help her pain.

Our work puts us in direct and daily contact with people who have EB and their families.

We fund nurses, run clinics and offer care and advice to EB sufferers, give welfare support and liaise with EB support groups across the country.

We also commission world-leading research into the condition with the aim of finding effective treatments and ultimately a cure for EB.

www.debra.org.uk

Latest News

Joel Stransky and Jan Braai up for the Cape Rouleur - predicted to be the toughest one yet

Thursday 26th February 2015

The Cape Rouleur, the first event in the HotChillee 2015 Global Event Series, will host ex Springbok Rugby legend Joel Stransky and South African founder of "National Braai Day" and TV personality, Jan Braai.

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Dean Downing to ride HotChillee's Cape Rouleur

Wednesday 25th February 2015

Dean Downing, who recently retired from pro racing and who is one of the most popular pros in British criterium racing will be taking part in the Cape Rouleur for the first time. Downing together with many of the Cape Rouleur’s European international riders will stay on to ride the Cape Town Cycle Tour, enjoying a full week of warm weather cycling.

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Events

The Cape Rouleur 2015