We are a caring organisation and give hope, dignity and practical help to everyone who has EB and their families.
We help them cope with the condition and have the best life they can - because EB cannot be cured and never just goes away.
We sometimes use three sentences to help people understand what life is like when you have EB:
Our work puts us in direct and daily contact with people who have EB and their families.
We fund nurses, run clinics and offer care and advice to EB sufferers, give welfare support and liaise with EB support groups across the country.
We also commission world-leading research into the condition with the aim of finding effective treatments and ultimately a cure for EB.
Entries open for the Cape Rouleur 2014Thursday 2nd May 2013
HotChillee are opening entries to the 2014 Cape Rouleur on Tuesday 14th May at 12 noon (BST). The first of HotChillee's multi-stage cycling events in its Global Event Series in 2014 will be held on 2nd to 6th March 2014 and places will be limited to 200. It is an early season event hosted in the spectacular cycling destination of Franschhoek, South Africa.Read More ...
The Hub, April 2013 - The Latest News from HotChilleeThursday 18th April 2013
The April Edition of the HotChillee monthly magazine, The Hub. Read all the latest HotChillee news.Read More ...