DEBRA is the only national charity supporting people who have Epidermolysis Bullosa (EB), a genetic skin condition which causes skin and body linings to blister at the slightest knock or rub, causing painful, open wounds.
We are a caring organisation and give hope, dignity and practical help to everyone who has EB and their families.
We help them cope with the condition and have the best life they can - because EB cannot be cured and never just goes away.
We sometimes use three sentences to help people understand what life is like when you have EB:
Our work puts us in direct and daily contact with people who have EB and their families.
We fund nurses, run clinics and offer care and advice to EB sufferers, give welfare support and liaise with EB support groups across the country.
We also commission world-leading research into the condition with the aim of finding effective treatments and ultimately a cure for EB.
Developing African cycling talent at the TSOGO Sun Amashova Durban ClassicThursday 15th October 2015
HotChillee today announced that two of its star young development riders will be heading to Durban to take part in the Tsogo Sun Amashova Durban Classic on the 18th October.Read More ...
Alpine Challenge 2015 final resultsTuesday 15th September 2015
This past weekend riders from 10 nations completed the 6th edition of the HotChillee Alpine Challenge. Riders took on many of the Tour de France classic climbs including the now notorious Semnoz, Col des Aravis, Col de L'Epine, Col le Marais and culminating on the tough Col de la Croix Fry for the final stage.Read More ...