We are a caring organisation and give hope, dignity and practical help to everyone who has EB and their families.
We help them cope with the condition and have the best life they can - because EB cannot be cured and never just goes away.
We sometimes use three sentences to help people understand what life is like when you have EB:
Our work puts us in direct and daily contact with people who have EB and their families.
We fund nurses, run clinics and offer care and advice to EB sufferers, give welfare support and liaise with EB support groups across the country.
We also commission world-leading research into the condition with the aim of finding effective treatments and ultimately a cure for EB.
Conquista - The Cycling Quarterly "The LONDON-PARIS 2014"Friday 15th August 2014
Excellent article about The LONDON-PARIS 2014 in Issue 4 of Conquista - The Cycling QuarterlyRead More ...
Photos: ICAP Finisher's Party & Awards, The London-Paris 2014Thursday 3rd July 2014
A small selection of photographs from the ICAP Finisher's Dinner & Party and Jersey Awards. Lots more available soon ...Read More ...