We are a caring organisation and give hope, dignity and practical help to everyone who has EB and their families.
We help them cope with the condition and have the best life they can - because EB cannot be cured and never just goes away.
We sometimes use three sentences to help people understand what life is like when you have EB:
Our work puts us in direct and daily contact with people who have EB and their families.
We fund nurses, run clinics and offer care and advice to EB sufferers, give welfare support and liaise with EB support groups across the country.
We also commission world-leading research into the condition with the aim of finding effective treatments and ultimately a cure for EB.
The Hub Autumn Edition - The Latest News from HotChilleeFriday 18th October 2013
Following an extremely busy summer, please find below the Autumn Hub. We review the final event in our global series; the Alpine Challenge and also our newest addition Le Grand Truc. Thank you to all the inspirational riders we have met throughout the year, we feature some of you in this edition, including those that have completed all three events in the series.Read More ...
Entries open for HotChillee's 2014 Alpine Challenge on 1st October 2013Wednesday 25th September 2013
Entries for the Alpine Challenge 2014, taking place on 3rd to 7th September, open at 12:00 on 1st October 2013. Part of HotChillee's Global Event Series, the three day event pushes riders mentally and physically, with a gruelling 8000+ metres of climbing across approximately 330kms.Read More ...