Registered Charity: 1084958 (England and Wales)

DEBRA is the only national charity supporting people who have Epidermolysis Bullosa (EB), a genetic skin condition which causes skin and body linings to blister at the slightest knock or rub, causing painful, open wounds.

We are a caring organisation and give hope, dignity and practical help to everyone who has EB and their families.

We help them cope with the condition and have the best life they can - because EB cannot be cured and never just goes away.

We sometimes use three sentences to help people understand what life is like when you have EB:

  • Imagine waking up every morning feeling pain similar to second degree burns.
  • Imagine every time you knock or rub your skin it blisters angrily and comes away in your hand.
  • Imagine having to give your baby morphine before you change her nappy to help her pain.

Our work puts us in direct and daily contact with people who have EB and their families.

We fund nurses, run clinics and offer care and advice to EB sufferers, give welfare support and liaise with EB support groups across the country.

We also commission world-leading research into the condition with the aim of finding effective treatments and ultimately a cure for EB.

Latest News

Developing African cycling talent at the TSOGO Sun Amashova Durban Classic

Thursday 15th October 2015

HotChillee today announced that two of its star young development riders will be heading to Durban to take part in the Tsogo Sun Amashova Durban Classic on the 18th October.

Read More ...

Alpine Challenge 2015 final results

Tuesday 15th September 2015

This past weekend riders from 10 nations completed the 6th edition of the HotChillee Alpine Challenge. Riders took on many of the Tour de France classic climbs including the now notorious Semnoz, Col des Aravis, Col de L'Epine, Col le Marais and culminating on the tough Col de la Croix Fry for the final stage.

Read More ...


The Cape Rouleur 2016