We are a caring organisation and give hope, dignity and practical help to everyone who has EB and their families.
We help them cope with the condition and have the best life they can - because EB cannot be cured and never just goes away.
We sometimes use three sentences to help people understand what life is like when you have EB:
Our work puts us in direct and daily contact with people who have EB and their families.
We fund nurses, run clinics and offer care and advice to EB sufferers, give welfare support and liaise with EB support groups across the country.
We also commission world-leading research into the condition with the aim of finding effective treatments and ultimately a cure for EB.
Joel Stransky and Jan Braai up for the Cape Rouleur - predicted to be the toughest one yetThursday 26th February 2015
The Cape Rouleur, the first event in the HotChillee 2015 Global Event Series, will host ex Springbok Rugby legend Joel Stransky and South African founder of "National Braai Day" and TV personality, Jan Braai.Read More ...
Dean Downing to ride HotChillee's Cape RouleurWednesday 25th February 2015
Dean Downing, who recently retired from pro racing and who is one of the most popular pros in British criterium racing will be taking part in the Cape Rouleur for the first time. Downing together with many of the Cape Rouleurs European international riders will stay on to ride the Cape Town Cycle Tour, enjoying a full week of warm weather cycling.Read More ...