We are a caring organisation and give hope, dignity and practical help to everyone who has EB and their families.
We help them cope with the condition and have the best life they can - because EB cannot be cured and never just goes away.
We sometimes use three sentences to help people understand what life is like when you have EB:
Our work puts us in direct and daily contact with people who have EB and their families.
We fund nurses, run clinics and offer care and advice to EB sufferers, give welfare support and liaise with EB support groups across the country.
We also commission world-leading research into the condition with the aim of finding effective treatments and ultimately a cure for EB.
Dunkerque-Roubaix with Geraint Thomas launchedTuesday 11th March 2014
HotChillee announced today a new 165km Dunkerque to Roubaix single day Spring Classic with Olympic Champion Team Skys Geraint Thomas taking place on 27 April 2014. The ride will start in Dunkerque and wind through the fields of Flaanders before joining the final 40k of the most coveted spring classics, the Paris-Roubaix.Read More ...
Cape Rouleur 2014 Stage 3 results - Dlamini wins 36ONE Yellow Jersey for Elton John Aids Foundation (EJAF)Friday 7th March 2014
Cape Town, Western Cape, South Africa. Nicholas Dlamini riding for UBS/EJAF has won the coveted 36ONE yellow jersey at this year's Cape Rouleur. Karl Platt of Team Bulls won the Pro Category jersey. The ladies jersey went to Jo Merritt, with the climbers jersey to Josh Hodge and Bradwin Daniels the talented development rider from Cape Town Giants winning the sprinters jersey.Read More ...