DEBRA

Email: Lucille.Starkey@debra.org.uk
Web: http://www.debra.org.uk
Registered Charity: 1084958 (England and Wales)

DEBRA is the only national charity supporting people who have Epidermolysis Bullosa (EB), a genetic skin condition which causes skin and body linings to blister at the slightest knock or rub, causing painful, open wounds.

We are a caring organisation and give hope, dignity and practical help to everyone who has EB and their families.

We help them cope with the condition and have the best life they can - because EB cannot be cured and never just goes away.

We sometimes use three sentences to help people understand what life is like when you have EB:

  • Imagine waking up every morning feeling pain similar to second degree burns.
  • Imagine every time you knock or rub your skin it blisters angrily and comes away in your hand.
  • Imagine having to give your baby morphine before you change her nappy to help her pain.

Our work puts us in direct and daily contact with people who have EB and their families.

We fund nurses, run clinics and offer care and advice to EB sufferers, give welfare support and liaise with EB support groups across the country.

We also commission world-leading research into the condition with the aim of finding effective treatments and ultimately a cure for EB.

www.debra.org.uk

Latest News

LONDON-PARIS 2015, a rising star ... and the sun!

Tuesday 30th June 2015

Spectacular sunny weather and a closely fought team competition ensured that the 12th edition of the LONDON-PARIS was the hottest yet! With only a couple of minutes separating the top 3 teams at the end of Stage 2, G!RO managed to secure victory over Bulk Hardware and Skoda in the 20km yellow race section of the final stage to Paris.

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LONDON-PARIS 2015 Stage 3 Pictures

Sunday 28th June 2015

A selection of photos from Stage 3 of LONDON-PARIS 2015

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Events

The Alpine Challenge 2015 - 9-13 Sept 2015