DEBRA

Email: Lucille.Starkey@debra.org.uk
Web: http://www.debra.org.uk
Registered Charity: 1084958 (England and Wales)

DEBRA is the only national charity supporting people who have Epidermolysis Bullosa (EB), a genetic skin condition which causes skin and body linings to blister at the slightest knock or rub, causing painful, open wounds.

We are a caring organisation and give hope, dignity and practical help to everyone who has EB and their families.

We help them cope with the condition and have the best life they can - because EB cannot be cured and never just goes away.

We sometimes use three sentences to help people understand what life is like when you have EB:

  • Imagine waking up every morning feeling pain similar to second degree burns.
  • Imagine every time you knock or rub your skin it blisters angrily and comes away in your hand.
  • Imagine having to give your baby morphine before you change her nappy to help her pain.

Our work puts us in direct and daily contact with people who have EB and their families.

We fund nurses, run clinics and offer care and advice to EB sufferers, give welfare support and liaise with EB support groups across the country.

We also commission world-leading research into the condition with the aim of finding effective treatments and ultimately a cure for EB.

www.debra.org.uk

Latest News

Wish you were here!

Thursday 21st April 2016

The HotChillee Alpine Challenge has been selected as the "Wish you were here" event in this month's Cycling Active.

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HotChillee London-Paris 2016 Stage 1- first ever closed circuit start!

Saturday 12th March 2016

We're excited to announce that the 2016 edition of the HotChillee London-Paris will see the first ever closed circuit start in the events 13 year history! And it will be supported by Maserati who for the past 100 years has been known for its style, technology and performance.

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Events

The Dunkerque-Roubaix 2016