DEBRA

Email: Lucille.Starkey@debra.org.uk
Web: http://www.debra.org.uk
Registered Charity: 1084958 (England and Wales)

DEBRA is the only national charity supporting people who have Epidermolysis Bullosa (EB), a genetic skin condition which causes skin and body linings to blister at the slightest knock or rub, causing painful, open wounds.

We are a caring organisation and give hope, dignity and practical help to everyone who has EB and their families.

We help them cope with the condition and have the best life they can - because EB cannot be cured and never just goes away.

We sometimes use three sentences to help people understand what life is like when you have EB:

  • Imagine waking up every morning feeling pain similar to second degree burns.
  • Imagine every time you knock or rub your skin it blisters angrily and comes away in your hand.
  • Imagine having to give your baby morphine before you change her nappy to help her pain.

Our work puts us in direct and daily contact with people who have EB and their families.

We fund nurses, run clinics and offer care and advice to EB sufferers, give welfare support and liaise with EB support groups across the country.

We also commission world-leading research into the condition with the aim of finding effective treatments and ultimately a cure for EB.

www.debra.org.uk

Latest News

The Dunkerque-Roubaix with Geraint Thomas - Results

Tuesday 28th April 2015

The 2nd edition of HotChillee’s Dunkerque-Roubaix with Geraint Thomas took place on Sunday 26th April. The event included Welsh pro Geraint Thomas, Tour de France legend Stephen Roche and a cross section of male and female amateur riders.

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OFFRIDING cycling events launched - A new series of multi-day gravel rides

Wednesday 25th March 2015

HotChillee with OPEN cycle announces the formation of a new series of cycling events that take you off-the-beaten-path. Developed by long-time cycling entrepreneurs Gerard Vroomen, Andy Kessler and Sven Thiele, OFFRIDING are free spirited multi-stage gravel rides exploring some of the most beautiful sites and regions around the world. It is bound by a sense of adventure to explore and complete the challenge rather than racing. As such, going off-course is actually encouraged.

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Events

The Dunkerque-Roubaix 2015